Living with Hidradenitis Suppurativa can feel very lonely. It is easy to feel like no one else understands what you are going through. But here, we do.

Think of Living Life With HS like a campfire. It is a safe, warm place to sit down (or perch!), rest, and share your load with people who truly get it. We aren’t doctors or medical experts. We are patients, family members, and friends who are walking the same path as you.

We built this space so that no one has to face this condition alone.

Here is what we share on the website:

Your Stories: We share our personal journeys so you can see that there are thousands of others standing with you.

Real Life: Our blog is a place for honest, gentle conversation about the things we all face day-to-day.

Help with Benefits: We know how hard it is to get support. We have created simple guides to help you navigate the benefits system.

Understanding HS: Simple, clear facts about what this disease is (and what it isn’t), to help you understand your body without the confusing medical jargon.